The HSE is in the process of appointing a team to develop a new national diabetes registry. The registry will be the first chronic disease data system hosted by the HSE. Plans for the registry were delayed by the Covid-19 pandemic, but funding has been allocated for a 0.5 whole-time equivalent clinical lead, a programme manager, a coordinator, an ICT specialist, and a data specialist, with some of these roles already appointed.
Key priorities for the HSE team include agreeing a governance structure for establishment and management of the registry; identifying and liaising with existing data controllers/data sources to build the registry; establishing the prevalence of diabetes in Ireland; generating reports for policymakers, clinicians, and people living with diabetes in Ireland; and improving outcomes.
According to the Department, the registry will have a long-term benefit for patients by facilitating benchmarking of individual care against guideline recommendations and by providing reliable information to healthcare planners and policymakers.
Diabetes Ireland has welcomed the announcement after many years of campaigning for a diabetes registry. According to the national charity for diabetes in Ireland, this “long-awaited initiative is set to transform how diabetes is managed, providing crucial data to improve patient outcomes and healthcare planning”.
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