Research conducted by Global Heart Hub, the international alliance of heart patient organisations, and presented at the European Society of Cardiology (ESC) Congress 2024 highlighted the need for high cholesterol levels management strategies that prioritise patients’ needs and perspectives.
The Insights from Patients living with Elevated Cholesterol (IPEC) research project reflect insights from individuals with confirmed elevated high LDL‑C from Australia, Brazil, and the US on the challenges faced by people living with high cholesterol, to help inform future management of such conditions.
Three key themes emerged from the IPEC results:
▶ The importance of clear communication about the seriousness of a high cholesterol diagnosis;
▶ The necessity of supportive, specific treatment plans and target goals;
▶ The crucial role of healthcare provider presence and availability.
The study also identified structural barriers to effective shared decision-making, including time constraints during appointments, administrative burdens and access issues. Overcoming these challenges will require policy changes driven by partnerships between patient advocacy organisations and medical societies, according to the Global Heart Hub.
Neil Johnson, Executive Director, Global Heart Hub, said: “The IPEC research emphasises the necessity for comprehensive and direct communication between doctor and patient. When it comes to a diagnosis, the initial interaction with your healthcare provider is particularly important. Our empirical data indicates that this dialogue significantly impacts patients’ cardiovascular health. To put it succinctly, it has the potential to alter the disease journey.”
Prof Kornelia Kotseva, Honorary Professor of Preventive Cardiology at the University of Galway added: “I’ve seen first-hand how personalised care plans can significantly impact managing high cholesterol. By using clear language and a collaborative approach, we can set realistic goals that fit patients’ lifestyles and preferences. Ultimately, our shared mission is not only to enhance their quality-of-life, but also, quite simply, to save lives.”
More information about IPEC and the ESC poster: https://globalhearthub.org/IPEC.
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